Thursday already! Jeez! Those two boys are really keeping me busy! I’m having a hard time keeping up with everything…
Tuesday night we went to a meeting about the new changes to our autism intervention that we’ve all had on our minds. It was an interesting meeting, and also a frustrating one all at the same time.
Good news that came from the meeting was that the 95% required attendance is on hold for the time being! What does that mean? Well, if you ask, you won’t get a straight answer, but basically they are waiting for the right time to implement this regulation. They couldn’t explain when this “right time” would be, but for now, it is on hold. Fine with me! They did however, say that if your child has additional health issues that the agency your child goes to could have special exceptions for your child. They also said that medical appointments will not be counted against the child as long as they are actual appointments. As I’ve mention before, we are very lucky with the fact that Ledger has a relatively strong immune system and very rarely gets the flu. I’m not as concerned with the attendance issue as I was before. This part of the meeting did put my mind at ease, however the fact that it is on hold, makes me worry that they could change the stipulations.
A large concern for the parents who were there was the fact that they kept referring to the 20 hours of direct face to face intervention our children should be getting and how crucial those 20 hours/week are. The presenters stated that research shows a minimum of 20 hours is needed in order to make a difference to the child. With this being said, our children are only receiving 15 hours/week. The director of the local agency spoke up to say that the 5 additional hours were for set up, tear down, and paper work. Unfortunately, this is not considered “face-to-face” or ‘direct’ in any way. Who is she kidding? She then proceeded to say that it is difficult to complete paperwork while the client is present, but that the agency would be changing the hours for the children, so that they will start 15 mins earlier and stay 15 minutes later and that the employees will start doing paperwork in front of the client. Confused yet? Me too!
OT was discussed. Apparently it was never originally in the budget from the government but was considered important enough to be part of the whole picture when the agency originally started the program. From my understanding at this point, it is the agency deciding that they can no longer fund that program that our children so desperately need. It’s very difficult to hear. If they felt it was important in the being then how can it just be disposed of?
Our time was cut short as the meeting had an end time due to custodial staff having to lock the building. They asked for a show of hands as to who would be interested in meeting at a future date and there was a lot of hands. We left the meeting without knowing when or where the next session will be.
Leaving the meeting I heard sighs, I saw frustration, and evidently confusion, which I’m sure is what you’re feeling after reading this. “Clear as mud” were my initial thoughts, and although there was a small glimpse of hope with the hold on the attendance issue, there are still too many unknowns and unanswered questions to let our guard down and feel comfortable yet.